Baby Saul, BMT, GJA3. Generic Disorder STXBP3: VEO IBD, hearing lost BabySaul,BMT,Generic

First post: Feb 9, 2022 Latest post: Jun 3, 2022
Hi, Saul was born on September 22,2021.
He is absolutely perfect in every way.
He was born full term, perfect pregnancy, I took care of my self better that my other previous pregnancy, we got released early because I was feeling great and I was extremely missing my kids.
Well, we got home Everyone we’re so happy, excited..
unfortunately,
Everything start in the morning of Oct21, 2021 we ran to the Morristown Hospital because the baby was sick ( thinking I will be easy to fix) but, they started checking the blood test when the results came back they couldn’t believe some number so they recheck it again and the terrible number was there: 104 Sodium level… they never have a patient we that sodium level.
To do it short after 100004847472937 tests, 7 different specialists And more they managed to stabilize Saúl, but they could not get the solution to the problem since they needed more specialized equipment.
Saul Got transferred to CHOP ( Children Hospital Philadelphia) on Oct29,2021.
Since that day Baby Saul journey Started.
So many test, blood drawn, hard night,

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