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Apr 18, 2016 Latest post:
Jul 9, 2016
This has been created this so that way my friends and family can keep informed of what is going on.
As a small child I was born with a teratoma tumor that was approximately half of my bodyweight. I spent quite a lot of time in the NICU after having two surgeries before I was 30 days old. One of those surgeries was to remove the tumor, the second one was to remove approximately half of my small and large intestines from complications with the first surgery. After the surgeries the doctors told my mother and father that I would have lots of complications in life.
For a long time I was a pretty healthy child I had some speech issues as well as some motor function issues but that was about it just like any other kid. As I got older things got a little hairier.
At about 15 or 16 I started having some pretty bad joint pains so my primary care doctor sent me to an orthopedic. I ended up having knee surgery at 17 and during that time, being sent to a rheumatologist as well for bloodwork and other tests. I was then diagnosed with rheumatoid arthritis at 17 years old. Trying to get medicine regulated in a hormonal teenager is no peach. So that was fun. But once that hurtle was taken care of we thought it was going to be smooth sailing.
A few years later my back started bothering me so off to the chiropractor I went. He started with some spinal X-Rays and to my surprise found holes in my spine. Which means Spinabifida. Nothing that would severely impact my quality of life because by this time I was already 20 years old.
Fast forward another almost 9 years. Now I'm almost 30. I'm playing Roller Derby with the Peoria Push Roller Derby, teaching dance and generally pushing through most of the issues without a problem. Then one day I pretty much just collapsed with what we suspected was a seizure. Off to the doctor we go. Several rounds of tests later and I have a diagnosis. Partial Symptomatic Epilepsy.
Any one of these things on their own is manageable. Together these all should be manageable but it's going to be a struggle especially since the doctors don't know what is causing the epilepsy.
What does this mean going forward? I'm going to need help. Whether I want to accept it or not. There are things I used to be able to do that I simply won't be able to anymore. So if I say "hey can you help me out a sec" please know I'm not being lazy and I truly do need the help.