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Sep 12, 2018
Welcome to our CaringBridge website. We've created it to keep friends and family updated about Sarah. Get
started by reading the introduction to our website, Sarah's Story.
Sarah was diagnosed with Mitochondrial Disease in January of 2011. Our journey to get to this point has been very eventful! Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook. Thank you for your continuous love, prayers and support!
Sarah Jean is now ten years old. She is very bright and loves to play outside. Her favorite things are watching Netflix, swinging in the backyard, and playing with her brother Blake and sisters Hannah and Brooklyn. Sarah is just like every other fourth grader- playful, energetic, and full of laughter- But for Sarah, that energy is a rare commodity. Sarah's body does not produce energy the way it should. Her cells do not convert food and oxygen into energy efficiently. It is hard to tell just by looking at Sarah, which is why Mitochondrial Disease is often called the "hidden horror"... Kids look normal, but the battle internally is raging. Sarah's body requires more sleep than average just to keep up. She also takes several supplements to help her body utilize the energy it does have. Her secondary diagnoses include Chronic Respiratory Insufficiency, Ketotic Hypoglycemia, Generalized Convulsive Epilepsy, feeding aversions, sensory issues, dysphagia, severe gut dysmotility and constipation, severe muscle weakness, chronic fatigue, and heat intolerance- all of which are typical of Mitochondrial Disease and prevent Sarah from living a typical childhood. Despite everything she has been through, Sarah is still smiling! She is full of joy and love, and her sense of humor is contagious! Please join us in praying for a cure!
Please read our journal for the rest of "The Sarah Chronicles."