May 11, 2007 Latest post:
Apr 25, 2014
Welcome to our CaringBridge site. It has been created to keep friends and family updated about our "Princess" Santina. My Story is the introduction to our CaringBridge site.
Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook. We also appreciate all your prayers for our girl's recovery.
Today, May 12, 2007 makes three weeks since Santina was taken to CHOP and this is her story so far. Santina Lynn Woolley was born on April 25, 2003 to Christine and Rob Woolley and big brother Anthony. (She got her unusal name from her great great grandmother Santina Pennello who was from Italy). Her beautiful red curls and her bold personality grew as she did. Along with mom and dad and big brother she had mom mom and pop pop, granny mom mom and granny mom mom's pop pop, memom and pepop and several aunts, uncles and cousins all wrapped around her little finger. When she was nine months old she found out that she was going to be a big sister. Robbie was born in July 2004 and they have been inseparatable ever since. Robbie couldn't say Santina so she became "Dee". Santina seemed to be a pretty healthy child until a Thursday night three weeks ago. She started with a slight fever and on Friday spent most of the day sleeping. On saturday morning mom and dad woke up to her crying that her bed was moving. When she was put on the floor she could not walk. Dad took her to the emergency room thinking it was an ear infection. The doctor said her ears were clear and ordered a Kat scan which also came out clear. Blood work was the done and her white blood cell count was over 500,000. The emergency room doctor sent her immediatley to CHOP. We thank God for that doctors knowledge and instint to do the right tests on her. At CHOP that night she was put in ICU and a procedure was done (sorry I don't know the medical term) to separate her bad white cells and her red ones, & the good cells put back into her. This procedure brought her count down to about 1/2. She was in ICU for 3 days where mom and dad slept by her bed side the whole time. She became known by the nurses as the very "verble" child. She would tell them "no" just as soon as look at them, but they said her fiesty attitude will help her get through these difficult times. She was then put in her a room and mom and dad were told that she has ALL. She would be in CHOP at least 28 days. ALL is treatable and 80% curable. We all have faith in God that he will cure her but need thoughts and prayers to get through the days in the hospital. She misses her friends and family (especially Robbie) so much. She has had four kemo treatments so far and other various treatments. The news Tuesday was that she has made progress but not as quickly as the doctors woud like. She may have to have her therapy changed next week. Please pray that the doctors will find the right mixture for her. I (mommom) will keep you posted on her progress where as mom is busy keeping her happy as well as her brothers.
UPdate on Santina's story : Sadly Santina relapsed on September 4, 2010, just one day shy of her one year off of kemo date. A devistating blow but we will fight the fight and win the battle against the beast again.
Update on Update : Sadly again after testing cancer free for over a year Santina relapsed in March of 2012 and several times after that. But she still goes on fighting and we continue to believe that God is planning something big in this little girls life.
On June 10, 2013 the gates of heaven opened and welcomed a beautiful warrior princess. Santina did not lose the battle, she just worked so very hard to earn her angel wings. I bet she is so beautiful in them.