Jun 18, 2022 Latest post:
Sep 16, 2022
Sam, my amazing son in law, was diagnosed with IgA nephropathy (Berger’s Disease) in September 2020, just 1 month after marrying my beautiful daughter, Victoria (Tory).
IgA nephropathy (nuh-FROP-uh-thee), is a kidney disease that occurs when an antibody called immunoglobulin A (IgA) builds up in your kidneys. This results in local inflammation that, over time, can hamper your kidneys' ability to filter waste from your blood.
Sam’s was diagnosed at an advanced stage, his kidneys were failing, functioning at only 16%. They tried medication to keep the progression at bay but ultimately the diagnosis meant a transplant would be needed, which brings us to today, his kidneys are functioning at 4%, he would be on dialysis if it wasn’t for the scheduled transplant (6/20/22).
My loving, caring husband filled out the donor form in December last year and after many, many tests and appointments (they aren’t messing around!) he was cleared as a perfect donor for Sam. Not only do their blood types match but most of their antigens as well. This is very good news for Sam, less autoimmune suppressants will be needed.
This kidney transplant is life saving, and also life changing. Victoria & Sam are trading one type of restricted lifestyle for another, although Sam will feel like himself again it comes with life changes.
It’s critical Sam doesn’t get sick or exposed to specific bacteria in the first three months, he won’t be allowed outside visitors but would love to hear from you on here or directly. Although we don’t want to go back to COVID isolation we learned how to keep connected remotely and we have a new opportunity to use those skills we learned.
We will keep you all posted as we travel this journey with our kids.