Sajjona Murphy Sajjona Murphy Trisomy18

First post: Nov 22, 2019 Latest post: Dec 5, 2019
Sajjona was born 6 weeks early weighing 3 lbs. 9oz and her length was 15 3/4 inches long. There was speculation before she was born of down syndrome, trisomy 18 or 13, or even possibly some type of muscle disorder. We chose not to do amniocentesis or any blood work, instead we were going to trust God. There were some doctors trying to convince us that abortion would be the best option. We are prolife and walked away from them. Even one doctor tried to scare us by telling us part of Sajjonas brain was missing and her mouth was shoved over to the side during an ultrasound. Our emotions og sadness and devastation are hard to put into words during this. We did pick ourselves up and turned to God and our church family. We remained faithful and prayed more than we ever had for our unborn daughter. Sajjona was tested after birth and was diagnosed with trisomy 18. We were told by a very cold-hearted geneticist: "Your daughter has been diagnosed with trisomy 18. She has a lethal diagnosis and is incompatible with life. She will never smile, laugh, walk or do anything that normal children do. If you are lucky she will live 2 weeks at the most. She will be a vegetable and do nothing. She will be a burden to your whole family." At this meeting Sajjona still had a breathing tube in. They asked me what we were going to do if she struggles to breathe. We told them to put it pack in like you would for any other child. From here on we had to fight for our child's life. To get proper treatment, to demand life saving interventions, to care for her like other children. Because of Sajjonas diagnosis she has been discriminated against on multiple occasions by various people who call themselves professionals. Sajjona is here to help other families and educate others.  She is now 2 years old weighing 21 lbs and almost 30 inches tall. She has lived way beyond their expectations. God has a plan for her. She is far from being a vegetable.