On April 1, 2016 the life of 2 year old Rylan Titus was changed forever. While Rylan’s father took a nap during his “parenting time” and neglected to lock the child lock at the top of the apartment door, he escaped and found his way to a nearby pond. Rylan nearly drowned and it is estimated he was without a heartbeat for 45 minutes. He received several rounds of CPR and his heartbeat did not return until 15 minutes after arriving at a nearby hospital. Rylan’s mother was at work when a police officer came to her and told her there was a terrible accident involving her son and she needed to come with him.
Rylan was hospitalized for six weeks. His prognosis was not good. Doctors could not give definite answers to what body functions he would regain due to the extensive brain damage suffered. When asked about Hyperbaric Oxygen Treatments doctors told the family that it was "not an option there and that it is experimental and could have harmful effects". Several months later Rylan's family saw news of a 2 year girl who was found face down in a swimming pool and had hyperbaric oxygen treatments by Dr. Harch of New Orleans at Harch Hyperbarics. Her brain damage was reversed. She began to sit up, walk, eat and talk again after the treatments. See Eden’s story here https://youtu.be/agYfoeAfsw4
Before for his anoxic brain injury, he was a very active two year old. He had a pretty good vocabulary and had just started preschool. Rylan was the typical toddler, running and playing, and getting into everything. After his injury, he was lucky that he had no damage to vital organs and after the breathing tube was removed he was able to breath on his own. This is probably due to his body temperature being so low as he fell into cold water. However, Rylan could no longer speak, eat, sit up, or walk. He had lost control of fine and gross motor skills and now has a high risk of seizures and aspiration. He now gets around by being pushed in a wheelchair instead of running and walking like he used to. There is no more climbing up in to his car seat. He must be carried and lifted into it. He no longer enjoys his favorite foods like chicken nuggets and French fries. He receives nourishment through a gastric tube in his stomach which meant a painful surgery for him. Rylan attends a “Developmental Preschool” now for kids with developmental delays instead of returning to his own preschool where he first started out. He now wears orthotic braces on his legs to keep his ankles from turning in due to the brain injury. He has to be on medication which is given several times a day to keep his muscles from drawing his body up into a ball. He attends physical, occupational and speech therapy several times a week to help regain some of his capabilities.
Rylan’s Father doesn’t help, and his Mother and her family carry all the care responsibilities. We feel that if we could get the word out about alternative care and financial support for Rylan we could make the $9,000 per block of Hyperbaric Oxygen treatments a possibility for Rylan. A block of treatments is 40 treatments in the chamber, which means an 8 to 10 week stay out of state. Rylan lives in Indiana and needs to travel to Louisiana . There will be traveling expenses and the need for shelter.
The good news is we know is he is very cognitive of what we are saying. He knows family. He tries to speak and has said some words. He has been successful at performing some tasks in therapy, such as using his arms and hands to press a large button which then makes the toy go. He yells when his favorite T.V. show ends and wants it played again. He has strengthened his head control somewhat and is holding his head up better than he was. He sometimes laughs when he thinks something is funny. He surprises us at times. Like the time his hand found its way into Mamaw’s snack bag as he sat on her lap. He is a fighter and has actually suprised his doctors, who have brought other doctors in to see him. He put the nurse to tears as he waved and said "Hi" to her.
Little Eden's experience is hope for Rylan. As part of his Healing Journey, he needs to visit Dr. Paul Harch in New Orleans to have HBO treatments. Hyperbaric Oxygen treatments recently helped Eden, a little girl the same age as Rylan, with the same type of injury to have a remarkable recovery. The only thing holding him back from getting these treatments is that insurance does not cover them and his Mother already has a huge financial burden now. She works as a waitress with very little income and is trying to get back into nursing school which she had to drop out of when Rylan had his injury. Rylan needs help from others to make it possible to get the therapeutic treatments in Louisiana.
As you can see by his handsome smile, he still in there! He is not in a vegetative state. He breaths on his own and his organs still function like they always did as far as we know. He still laughs when Grammy gives raspberries on his tummy and hollers when his favorite cartoon ends to let you know to restart it. He speaks some words at times and still knows his family. These treatments give him hope that he can regain even more and do some of the things he did before his injury. Please, if you would, give a little so that he can continue his Healing Journey and get the treatments that are much needed in New Orleans at https://www.gofundme.com/rylansjourney
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Visit this website and see the story of Eden, a little girl Rylan's age, who had a remarkable recovery. Doctors have found that this has been a breakthrough in medical history. https://youtu.be/vIt1fzeBogE