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10/15/2016 Latest post:
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
As many of you already know, I started experiencing pain in my legs and left side at the end of July/start of August. By the middle of August something i thought was just a sciatica issue turned into pain in all my large joints and large muscle groups... blah,blah,blah bottom line end of September I ended up at my doctor who said I looked toxic, sent me for blood work and the next morning Roger said "put some clothes on, we're going to the hospital...Although I started at Lenox Hill, ,I've now migrated to Sloan Kettering Memorial on 68th and York in NYC,
Here my diagnosis has been confirmed as BURKITT LYMPHOMA. A very rare form of lymphoma. Oddly enough, my roommate is diagnosed with the same disease. You will undoubtedly research and find that it is both an aggressive form of non-Hodgkin lymphoma and one that responds well to aggressive chemotherapy. I start a 5-day infusion treatment cycle Tuesday. I will likely be an inpatient for 3 weeks before being released to come back for 5 more cycles in clinic, barring complications. We expect at least 4 1/2 months of treatment in and out of hospital while staying close by with Roger and Kathleen or Richard and Marla.