Jun 22, 2018 Latest post:
Sep 23, 2018
We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Roxli has been experiencing headaches for a couple of weeks now. In the past week they got much worse and after numerous doctor visits with no clear answers as to why, they got an MRI done. On the morning of June 21st they received a phone call to go to Dell children’s hospital.
The news is not good. Roxli has an inoperable tumor on the back of her brain that is pushing on her spinal chord. It is called Pontine tumor or also called DIPG.
Last night, they started steroids for her to help relieve the pressure. They will check the tumor again in a couple of days. The doctor is giving them the full schedule today. If the tumor hasn’t shrunk they will consider putting in a stent to redirect the fluid.
She will stay in the hospital for a couple of days and then the family is going to the beach for a vacation.
When they return she will have radiation treatments Monday - Friday for 6 weeks to hopefully slow the growth
We will keep you updated with any information that we get.
The family asks for now to allow them some privacy and some time to process the news. Gena asked to please allow them some time before reaching out.
If you have any questions please contact any of us listed below.
Brandee Otto Jessie Yull Jessie Ralston Heather Arnold Beth Costin