Welcome, family and friends, to Rob’s TP-IAT website. We wanted to find a way to keep everyone informed about plans and progress during this difficult time. After a decade of flares, hospitalizations, tests and hardship, Rob has decided to proceed with TP-IAT surgery this summer in Minneapolis, MN—a huge but inevitable step. TP-IAT stands for Total Pancreatectomy with Islet Autotransplantation. This involves removing the Pancreas, isolating Islet cells from the resected Pancreas, and transplanting the Islets into the Liver. Islet cells are responsible for insulin production, so if this part of the procedure goes well, Rob could be insulin independent for a number of years.
The surgery lasts approximately 10 hours. Rob will be in the ICU for a few days, and then, if he is doing well, he will remain on a unit for another couple of weeks. When he is stable enough to be released from the hospital, we will move into the small house we rented just outside Minneapolis. The surgical team expects we will stay in MN for approximately 8 weeks post-surgery due to his significant recovery needs—nutrition/digestion, insulin, and surgical wound care. Rob’s parents have graciously agreed to care for Sam and Romy in NY for a couple of weeks and then move with them to MN so that we don’t have to be apart for too long.
It is our deepest hope that the rough road ahead will eventually lead to a vastly better quality of life for Rob. He has had to sacrifice so many of the things he loves most, particularly in the past couple of years, but we have an abiding faith in our future. Though I’m not sure how often I will add content leading up to the surgery, I will try my best to post frequently while we are in MN. Please feel free to add your own comments and messages as well. All of our thanks for your love and support.