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3/20/2017 Latest post:
Bob has recently been diagnosed with ALS, although he has had symptoms for quite some time now. He has changed a lot both physically and mentally. People with ALS can be affected very differently and it progresses very differently for each person as well. The doctors believe that he has a type of ALS called Bulbar ALS which originates more in the mouth and throat area rather than the limbs. At this point, he is still mobile and able to walk around, but things have progressed quite rapidly and he can no longer use his arms or hands very well. He cannot dress, bathe or feed himself for the most part and his speech is becoming slower and more difficult to understand. It’s not only affecting his body, but his brain as well. He doesn’t seem to be able to process information or communicate what he is thinking the best. We think he understands all of what is going on, but it’s honestly hard to tell sometimes. The palliative doctor came to meet with the whole family recently and the decision was made with the doctor that they won't be doing any aggressive or invasive treatment. We will do everything we can to make every day the best it can be for him.
He is going to respite care Monday 3/20 through Friday 3/24 at Lake Ridge GoldenLiving Center. It is on Victoria St in Roseville. Fairview Hospice will start shortly after that and be coming to the townhouse in Roseville 2 days a week and they will increase the days when needed. For now he’s still able to get out and do things and of course welcomes visitors.
Thank you for the positive thoughts and prayers. The time we spend with our loved ones is the most important.
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