Robbie Trejo Robbie's Journey

First post: 2/10/2017 Latest post: 3/22/2017
Welcome to our CaringBridge website for Robbie. We are using it to keep family and friends updated in one place. We appreciate your support, prayers, words of hope and encouragement. Robbie was diagnosed at 21 weeks in utero with a Congenital Diaphragmatic Hernia also known as CDH. It is a birth defect where there is an opening in the muscle that helps you breathe, called the diaphram. The opening can be on the right or left side, in Robbie's case the opening was on the left side. The contents of the belly, including the stomach, spleen, liver and intestines go up into the chest with all that being said Robbie's heart is pushed over to the right side of his chest which has compromised  both of his lungs from developing. He has been diagnosed with Atelectasis (complete or partial collapse of a lung or a section (lobe) of a lung). The upper lobe of his left lung is completely closed and his right lung is partially collapsed. Last but not least he has been diagnosed with Pulmonary Artery Hypertension (PAH) a condition affecting the heart and lungs. People who have PAH develop high blood pressure (hypertension) in the arteries of their lungs (the pulmonary arteries).The pulmonary arteries carry blood from the heart to the lungs; there, the blood picks up oxygen needed for physical activity. In order to push enough blood through pulmonary arteries that have been narrowed by PAH, the heart must work harder. Over time, the heart loses its ability to pump as much blood as the body needs which weakens the heart or can lead to heart failure. The right side of Robbie's heart has weakened due to being overworked so he is being treated with Sildenafil, a vasodilator. Robbie had his hernia repair surgery at 4 days old on February 24th. They had to use a patch to close the hole because it was too large to close muscle to muscle. This is our sons fight against CDH and PAH. Thank you for visiting. We love you all! God Bless!

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