Rex Franzen

As some of you know, Rex was recently diagnosed with Sandhoff's disease. I've created this space as a place to share updates to relieve some of the burden for the family for needing to update everyone individually. You can share your comments on love here in this space. Right now, the Franzen's especially welcome prayer support and expressions of care and concern. You can keep Rex, his mom Amber, brothers Gus and Piper, and whole family in prayer. We'll post other updates soon. Here is a link for ideas on how to be helpful for friends or family dealing with Sandhoff.  

http://www.ntsad.org/index.php/infantile-a-juvenile-support/ways-to-help