Rebecca Miller | CaringBridge

Rebecca Miller

First post: May 30, 2018
I am Rebecca Miller and I would like to share the rest of my life with you!
I am 5 years old and am a very active and happy little girl.  I have a great Mommy and Daddy, a two big sisters, and a big brother.  I have great-grand-parents, grand-parents, aunts & uncles and cousins and lots of people who love me, I am a really lucky girl!

On Wednesday, May 23, my left arm would not do what I told it to do.  Sometimes I don't do what I am told, so I thought I would just let it do what it wanted and do everything with my right arm.  Well, my mommy asked what was wrong with my arm and I told her it just wouldn't work.  She asked if it hurt and I told her it didn't.  She said we better go to the doctor and have him tale a look and I said "we don't need to go mommy, I have another arm."  She thought we better go anyway.

We went to the doctor and he took a picture of my arm, he poked on  it, he moved it around, he asked me to move it and I said "it won't move for me."  He asked if it hurt and I told him that it did not.

He told my mommy that he could not find the problem and that she should take me to Children's Medical Center, which is just what she did!

They poked it, moved it around, asked me to move it and I told them that I couldn't.  They asked if it hurt and I said "nope."

They said I needed to have a cat scan and I was anxious to see the cat, but there wasn't one.  Just some machine that took more pictures.  We waited a long time and they came in and said that I needed to have an MRI, and that I had a growth on the base of my brain that they wanted to take a better look at.

They came to get me for the MRI and gave me a shot and that's all I remember about the MRI.

Doctors told my mommy and daddy that I had Diffuse Intrinsic Pontine Glioma or DIPG which is a tyoe of cancer.  It was on my brain stem.  They said it was inoperable and that treatment would only help for a few months.  This mean stuff causes rapidly developing problems controlling eye movement, facial expressions, speech, chewing and swallowing, weakness in the arms and legs, and problems walking and with coordination.

I don't really know what that is, and I don't understand a lot about what is going on, but my mommy and daddy, my grandma, my aunt Amanda, my aunt Denise and Uncle Coleman and my brand new cousin Tracy (just born May 18) were all at the hospital to see me and did a lot of frowning and talking quietly around me.  They looked sad and I thought maybe they wanted to see the cat too.  I did tell them that I was sick and when they asked what I meant, I said "well, I am in the hospital you know."

Now mommy and daddy say that we have to go back to Children's Medical Center every weekday forever for radiation.  I think that is supposed to be good for me, but I keep tellin' em, "I have another arm you know!"

My mommy and daddy say we will be really busy this summer enjoying things I've never done before, going place I will like going to, and just loving and being loved by my family as much as I can. 

I thought it would be fun to share my story with you so you know how I'm doing, what I'm up to, how this radiation stuff is working, and if we ever find the cat.

I hope I can bring as much joy to your life in the next few months as I have to my family and friends in my short 5 years.  I'll keep posting my adventures as long as I can!

Please pray for my family, they seem to be so sad.  I'm sure your prayers will help them feel better. cancer.  It was on my rain stem and had moved to my spine too.  They said it was inoperable and that treatment would only help for a few months.  

We appreciate your support and words of hope and encouragement. Thank you for visiting.


CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Rebecca’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register
SVG_Icons_Back_To_Top
Top