Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We continue to appreciate your support and words of hope and encouragement. Thank you for visiting.
I have Hereditary Hemorrhagic Telangiectasia (HHT) which affects blood vessels and manifests itself in various ways in those affected. To date I have been able to pretty effectively manage most of the symptoms of the disease, which tend to worsen over the years. About 25% of those with HHT develop hepatic AVM’s (arterial vascular malformations). In some of these cases the blood vessels passing through the liver become enlarged allowing increased rates of blood flow to the heart. This creates a “high cardiac output” situation, which for me has reached a level that must be treated to avoid cardiac failure. I have sought treatment at the Mayo Clinic in Arizona where they have had success with liver transplants to “replace” the enlarged blood vessels and thereby ease the load on the heart. Visit www.hht.org (
http://www.hht.org) for more on HHT.
