Preston Macon the Iron-Man
Preston Macon the IRONMAN
Meet PRESTON aka The IRONMAN. He is a remarkable young man, who was also born with Short Bowel Syndrome (SBS). Short bowel syndrome is a condition in which the body cannot absorb enough fluids and nutrients because part of the small intestine is missing or is not working properly. His mom, Misty, shares his story and the many challenges that she has faced. He was born with 30cm of small intestines due to gastroschesis which resulted in "short gut syndrome." Preston has had 3 major abdominal surgeries and spent 6 months in the Nicu before coming home. He has spent the past 6 years seemingly healthy with only minor setbacks since then because his mother has taken sole care of his central line. His central line is the catheter that goes to his heart which gives him his liquid nutrition called TPN which keeps him alive and hydrated. His line is always at risk for infection or damage so we have to keep a close eye on it always. The line caused a blood clot which they found in June 2018. The clot has been in his heart for so long that it had grown too large and calcified to be removed by Cath surgery. Surgeons had to do open heart surgery at which point they found another clot in his pulmonary artery which was blocking the blood flow to his left lung. The clots were removed and praise God surgery went well. Following the surgery he experienced malnutrition at the hospital to the point he was transferred to another hospital. Now nearly 2 months later he is requiring his TPN 16 hours a day to keep himself growing and hydrated. Prior to the surgery, Preston was only getting a small amount of TPN and almost weaned off. In addition to the extra fluids, he now having to receive a daily shot injection into his leg for blood thinner treatment which carries the risks of bleeding if he were to fall or have an accident. He is also on a pump at night to give him extra formula to help him with nutrition into his stomach in hopes of being able to reduce the amount of TPN needed. TPN in large doses or extended time can cause liver or kidney failure. The doctors have given him 6 months with this current central line before he will need another surgery to remove and replace it in hopes to prevent another blood clot or other difficulties it may cause.