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Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your loving prayer support and words of faith, hope and encouragement during this time when that focus matters most. Darlene has struggled long & hard with many complex health problems. It wasn't until a few years ago that an astute rheumatologist put the seemingly arbitrary pieces together & suggested she might have been born with a rare primary immune deficiency disease, called CVID~ which is exactly what she which is exactly what she was diagnosed rather quickly with, once we knew what to look for. The huge sense of validation I began to feel after being made to appear to be a hypochondriac - or at the very least a whacky kook for "cooking up" so many misunderstood problems as I brazenly self diagnosed them dead on with uncanny accuracy with myself. Keep in mind, I was surely unraveling these heretofore unknown, unspoken mysteries ~ & all the while I'd come up clear on all of my tests- yeah, that any calm before rapidly becoming replaced with a sense of defeatism once I began to come to grips with the sheer scope of the disease