Dec 11, 2016 Latest post:
Dec 16, 2020
As most of you already know when Cash was 3 weeks old he began having seizures. Since then his epilepsy has evolved into infantile spasms in August 2017 that eventually led to the diagnosis of LGS (Lennox Gastaut Syndrome) in November 2017. Basically is a fancy term for difficult to treat seizures that can change at any given moment. It also has specific waveforms on EEG. His most common types of seizures are atonic (drop seizures), myoclonic (jerking), tonic clonic. Along with this he has continued to have hypotonia (low muscle tone) which makes it difficult to walk, also has made it harder for him to clear secretions with respiratory illnesses, global developmental delay, aspiration on thin liquids, constipation, non verbal, mild sleep apnea. February 2019 was very rough for him, shortly after having his tonsils and adenoids removed, to eliminate obstructive sleep apnea, he developed complicated pneumonia which lead to septic shock and resulted in cardiac arrest. He received CPR 3 different times for a total of several minutes until placed on ECMO (heart&lung bypass) life support. With help of some amazing doctors and hospital staff, the power of prayer and God he made a full recovery and was discharged after a 35 day long hospitalization.
Cash has worked with AEA staff and special education teachers, as well as, Physical therapy, occupational therapy, and speech therapy at Blank Pediatric therapy in Ankeny since 6 months old to help him to reach the best of his abilities and achieve the highest quality of life possible with this disease.
While there is no life expectancy for LGS we know that it can slowly take away his quality of life. We plan to live each day to its fullest as this diseases will allow. His love for the outdoors and mother nature has been strong since birth and he was gifted with a travel trailer from Make-A-Wish in September 2019. He's really enjoyed our camping trips with family and has created wonderful memories to be cherished.
We thank God every day for our wonderful family and friends. Their support, prayers, and kindness is what has helped Cash and our family to get through the harder times.