Chris Barnett Chris Barnett

First post: May 20, 2021 Latest post: Jun 21, 2022
Thank you for caring about “hubby”,  “Daddy C”, “Pokerman11s” ... Christopher Don’s story!  Since this is a “journal” I will be notating what I do briefly because Chris and I like to go back and reflect on what happened when he was in surgery, that day, and so on and it helps me remember the full details. 


Thank you for caring about Christopher Don Barnett! ♥️


I will update this so family or anyone who wants to see his story is in the know!♥️ 


(First post on Facebook below and going forward, I will post as we have updates). Thanks!
——-
(Monday, May 17)


Chris has officially let his grandparents and parents know so he asked me to send everyone an update as he does not have Facebook. ....He has a long road ahead of him but he has got this!♥️


Well Chris does not have sarcoidosis after all. Sarcoidosis apparently can look like many different cancers.  Thank the Lord for a good surgeon and oncologist who finally listened to science and his symptoms. 


Chris has something called NLPHL Hodgkin Lymphoma. He will have a PET scan Friday to ensure everything else is Ok!♥️
He will have a port put in the following week...next step will be chemo. They will do chemo for 3 months and then reevaluate. Then chemo again for 3 months. From there, If needed, he will do radiation. We are hoping for no radiation. 


However, the doctor is hopeful regarding only chemo if all goes as planned!♥️


The doctor is calling this stage one for now since they did surgery and removed “one” lymph node (actually 2 but they were connected so they are calling it one large one for now). However, after the PET scan, they will “call” the “for sure” stage he is in. 


This cancer, it is treatable but it does have a tendency to come back. However, it is treatable each time. ♥️


This cancer is very slow growing.  We have known something was “wrong” for about 3 years but no one could pin point it. If you will. That is normal apparently with this cancer. 


“This form of Hodgkin’s lymphoma has the same symptom as Non Hodgkin’s lymphoma but isn’t Non Hodgkin’s lymphoma”.  Dr Nair 


Chris feels fine! For that we are thankful! We are praying and hoping that he has the same experience with the chemo as he did with his surgery!♥️ He has been so strong! 


Chemo side effects for him: So he will be very tired. Loose his hair. That’s what they expect the most  to happen. 


He’s got this! To follow his story @thepokerman11 on Instagram. I will be keeping a journal and updates there and his caringbridge. 


“Nodular lymphocyte-predominant Hodgkin lymphoma (NLPHL) is a type of lymphoma that develops from abnormal B lymphocytes (B cells, which are a type of white blood cell). NLPHL is not very common – around 1 in 20 cases (5%) of Hodgkin lymphoma are NLPHL. There are about 200 cases of NLPHL diagnosed in the UK each year.”


I love this man!🤩😍🤩

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