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Jul 19, 2017 Latest post:
Sep 9, 2017
Much of this information may be a repeat but i am very confused these days so i apologize. We made it to Emory. Nice digs but now i must organize the room, as usual. No changes in the blood pressure area. Phil is still in the hospital. They cannot figure out the low blood pressure drop when he stands up (still drops 50 points). It feels as phil will never come home. Some symptoms are better but he is pretty much confined to bed rest since june 22. No more seizures since june 30th. Stools progressing so slowly but this blood pressure problem is stumping the doctors. They have tried adding peaches, sodium tablets, and caffine tablets to his diet. He wears a special support around his upper body and wears the thigh high support hose. Yesterday they added a contraption on both legs which tighten then loosen every so many minutes. I don't know what to pray for anymore. I spend more time giving God a "what for". Phil is not getting worse so that's my good news. They are back to talking rehab rather than a nursing home. It's been tough not getting new info nor any answers. Tests are a daily occurrance. I continue to pray for a miracle. He weighs about 152 pounds.
Then there are my daily trips to my friend loretta's. That half hour trip has gone from 1 1/2 hours to an hour this morning. My sense of direction has never been very good but these days, it has become vey bad. Last night we signed me up for Uber... Gotta love Atlanta traffic. Every trip is a new adventure. I have taken wrong turns with each one. My brain no longer functions as it used to. I pray that it will return to normal, whatever that means!
The nurses are reborn Vampires. I believe they are selling phil's blood since it's AB rh negative rather than running tests.
We saw the cancer doctor today. That group will now join the neurological team. May their combines efforts find some answers.
The recent MRI came out clean. They have ruled out petuitary problems and thyroid issues. Ruling things out is a good thing but I wish they'd find something fixable... cancer is on hold while the neurology team figures out the blood pressure problem. Then it's back to the cancer.
You order meals 3 times daily. It's like ordering from a restaurant. Food is great and Phil's appetite has come back with a vengeance. I believe that I covered most things. I cannot wait to post some answers. We appreciate all the well wishes and cards. I'm sure our post person is wondering why our mail is accumulating. No one can give us a time frame yet. So, we continue one day at a time. Hugs to all and thank you for your prayers.