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Dec 31, 2016 Latest post:
Jan 24, 2017
Welcome to Peter's site and thank you for visiting. It has been a wild ride so far as some of you may know. We went for Peter's 2 month check up and the doctor was concerned by his jaundiced skin and distended stomach so she sent us to get blood work done on Peter. From there we were admitted to the local Children's and Women's hospital in Mobile.
It was during this initial hospital stay that doctors discovered Peter was born with a liver condition called Biliary Atresia. It's a condition that affects approximately 1 in 18000 children. They are born with it and doctors do not as of yet know the cause for this disease.
After diagnosis Peter underwent a surgery to reroute the bile ducts of his liver directly to his intestines. He basically had no gall bladder left in his body when they performed surgery.
We knew the surgery was simply a temporary solution to Peter's health issue as there is no true cure for his disease. Some children can go years without needing transplant, others will need transplant within a matter of months.
As we continued with our follow up appointments with our local GI, it became clear that Peter would need transplant very soon.
It was the need for a liver transplant that has brought us to the team of Children's healthcare in Atlanta. Peter has undergone evaluation for transplant and is now listed and waiting to receive a donor organ.
We appreciate you following us and supporting our family through this journey. We appreciate your prayers for Peter, our family and the medical team whom we have trusted to care for our precious boy. God bless you and thank you again ❤