Paul Rost Paul Rost Transplant

First post: Jun 13, 2019 Latest post: Mar 27, 2020
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Many of you already know Paul has a couple serious liver issues which are going to require him to have a liver transplant as soon as possible. He was diagnosed in the fall of 2018 with PSC. PSC stands for Primary Sclerosing Cholangitis. It causes scarring to occur in the bile ducts of the liver, causing them to eventually close off completely.  Later in January while undergoing testing, it was discovered he also has bile duct cancer. The fancy name for it is Cholangiocarcinoma. He is going to through a battery of tests to be approved to be put on the transplant list. We have been working with both Barnes in St Louis and Mayo clinic in Rochester Minnesota. This week, we have spent the entire week at Mayo. Mayo clinic offers Living Donor Liver transplant. Barnes only offers cadaver donor transplant.  Paul is getting approved in both places.  After testing is complete, he will have to undergo 3 to 4 weeks of chemoradiation at Mayo Clinic in Rochester Minnesota. We will have to live there for a month. After that is complete we can come home until a compatible donor is found for transplantation. I can send information to anyone who would like to see if they are a compatible donor. After speaking to his surgeon this morning, she said living liver donation would be best for him because of the cancer. The cancer needs to be removed as soon as possible to prevent possible spread of it as time goes on. With all of this said, we are going to need lots of help. Molly is a big part of this story. She has been with us all week and is very aware of what is going on. She will not always be able to be with us, when anything surgical is going on.  We will be needing caregiver help for her in the future.  For now, we are asking for your prayers and for your support in any manner you feel comfortable with. I will put a schedule out here as soon as I get it.  Thank you all so much for your support.


Love, Paul, Barb and Molly

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