Paul Kleeberg | CaringBridge

Paul Kleeberg

First post: Nov 29, 2017 Latest post: Sep 7, 2018
I need your help in finding a kidney

I have an awkward request, I need your help in finding a kidney due to cystic kidney disease – a genetic disorder. Over the years I have gradually progressed through stage 4 and was recently approved for a kidney transplant at Mayo.  My wife was a perfect match and was hoping to be my donor, but during her final work up in November, a CT scan revealed she had small cysts in her liver and kidneys so she is not eligible.  That was a big disappointment to both for us.  Consequently, we now need to search for a donor.

Without a live-donor transplant, I will soon need dialysis and the average life expectancy for a person my age on dialysis is about 4.5 years.  With a transplant, I could have a normal life and life expectancy.  I am on the waiting list for a deceased donor but the wait is estimated to be five years and the viability of a deceased-donor kidney is lower.  Most dialysis patients die before getting a kidney from a deceased donor.

If you know of someone who would consider kidney donation, more information can be found at:

https://unos.org/donation/living-donation/

https://www.kidney.org/transplantation/livingdonors

And here are some facts about being a donor:

·      You only need one kidney to live a healthy, long life. 

·      Most donor surgery is done laparoscopically, through tiny incisions.

·      The recuperation period is usually fairly quick, generally two weeks.

·      The cost of your evaluation and surgery will be covered by my insurance. Mayo can give you extensive information on this.

·      You will have a separate team of healthcare professionals to evaluate you as a living donor. Their job is to help you understand the risks and benefits and look out for YOUR best interests.

If you or someone is interested, the first step to test one’s eligibility is to fill out a health inventory. That can be done online.

http://www.livingdonormc.org (http://www.livingdonormc.org/)

Finally, here is the link to the kidney transplant center at Mayo:

https://www.mayoclinic.org/departments-centers/kidney-transplant/home/orc-20203197 (https://www.mayoclinic.org/departments-centers/kidney-transplant/home/orc-20203197 )

Asking someone to donate is a big request and I’m uncomfortable in making this request, but I must because my life depends on it. I appreciate any help you can provide in finding a kidney donor.

Thank you,

Paul

For those interested in numbers, my GFR is 17 (normal > 90) and end stage is below 15 where one needs dialysis.  My BUN is 85 (Normal 8-24)

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