Oct 13, 2020 Latest post:
16 hours ago
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In the middle of September one of our family came down with Covid-19. All of us got Covid and healed pretty quickly and did not have any complications.
A few days before we entered the hospital I noticed that Luke had more bruises than normal and had a scratched that was not healing. The day before we entered the hospital I saw sores all over his lips and inside his mouth. Our doctor told us to go straight to the ER because they would want to draw blood.
The first thing they told us at the ER was that all of his blood draw levels were very low. Platelets were extremely low, red blood cells and also white blood cells were also low. They decided to admit us in the hospital on the evening of the 7th of October.
As we stayed the first night they gave him a platelet transfusion. The morning of 8th they did a bone marrow tap and found that the sample that they had taken had absolutely no blood generation happening at all. The doctor asked us to stay in the hospital until they could provide us with some answers and a treatment plan.
Because Luke was still testing positive for Covid, the doctor mentioned it could be a possibility that this super rare condition could be a result of a child having a virus, any virus. They gave us one more platelet transfusion on the 9th before we were sent home, as his levels were still dropping. Before we left, the doctor asked us to return three times a week to his office to check his blood levels and to receive transfusions, if necessary.
At the time of leaving the hospital we were informed this condition of aplastic anemia will either resolve itself over the course of time, maybe a couple months, or it will take longer if this is not related to having a virus. If this does not resolve itself we are on track for a bone marrow transplant in Salt Lake City, if one of the family members is a match. If no one is a match, then we will need to do chemo and radiation for the purpose of immune suppression.