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Nov 5, 2017 Latest post:
Apr 8, 2018
My name is Paisley Ann Marczak. I was born on November 2, 2017 at 7:28 pm. I weighed 3 lbs 8.1 oz and 16 inches long. I was born 6 weeks early with Semi-lobar Holoprosencephaly and also with a bilateral cleft lip and cleft palate. I had an MRI done on my Brain early Friday morning. My parents Samantha Waska and Jon Marczak waited with my grandparents to get the results. That is when it was confirm my diagnosis. Later that night my parents and grandparents met with the pediatric neurologist. He told my parents that the MRI was a every abnormal brain MRI. He said that there are areas of my brain that of should of split that didn't and some area that are Missing some brian tissue. He said he is not going to sugar coat this. When he sees a MRI like Mine this is the worst case scenario. I might only live a year, but could live longer. She might not be able to walk because my cerebellum is smaller then usually. There might be a chance i might of be able to see or hear. There is a chance I could have seizures but like he said this things that could happen. I will have mental challenges during my life but that is ok because my mom and dad love me and all my grandparents, aunts, uncles, and cousins are also there to love me and support me. Plus have all of extended family and friends and their prayers that will help me and my family.