Owen Norris

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I thought this might be easier for people who are concerned about Owen to check out. Probably should have checked in weeks ago but we’ve been focused on Owen.   Owen has been in a hospital since Thanksgiving Day.  In the course of scans and MRIs we found out he has a Glioblastoma. Those are the tumors that aren’t curable and are super aggressive. In some cases people can buy time with radiation and chemo treatments. But this monster in the end wins.  For Owen’s there is no radiation to buy time because he had radiation back when he was 12 to save what vision he has. The rules are can’t use radiation in the same area as it permanently kills all cells including healthy ones and they don’t regrow. That radiation  treatment may be the starter if you will to his current tumor. Or not.  His chemo options are limited because he has ITP which means his immune system lowers his platelets(the things that help clot your blood). Most chemo treatments lower your platelets for a normal person this is watchable and monitored. For Owen this is too dangerous. So he has very few options for treatment. Since November the tumor has grown. It has caused swelling in the ventriculs and we’ve struggled with sodium levels .
Last night he started having seizures and we were rushed down to PICU. They were able to pull some fluid out because of an earlier procedure in which a neuro surgeon went in and made a 
natural drainage  by poking a hole   There’s more to it but that’s the short story. This was suppose to keep fluids draining and the swelling down as his brain reabsorbed the drainage. It probably got blocked. We’re looking at a permanent shunt that will be placed in the same former site and drain into his stomach   That’s good news since it’s easier to do operation now 
So right now we’re in PICU hoping and praying Owen improves a little and waiting for next leg of this journey 

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