Amanda Groth Ollie updates

First post: Apr 26, 2018 Latest post: May 17, 2018
My little Ollie pants was diagnosed with SMA 1. He was able to receive SPINRAZA within 24 hrs of diagnosis. As of right now he is hospitalized to get his body and lungs strong as he was severely malnurished. My little man is making leaps and bounds on body movements. Had a significant change within 24 hours of receiving first loading dose. He will be receiving G-tube this week. I will updated when I can.