Our sweet baby Nora has been diagnosed with a rare genetic condition called Pompe Disease. There is no cure for Pompe, but there is a new treatment that has been shown to increase life expectancy by a few years. We are praying that Nora's body accepts this treatment (weekly enzyme infusions) so that we can give her and Alina a wonderful childhood full of life and love.
CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.
