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Nora Rue Walton
Aug 9, 2017 Latest post:
Sep 5, 2018
Our sweet baby Nora has been diagnosed with a rare genetic condition called Pompe Disease. There is no cure for Pompe, but there is a new treatment that has been shown to increase life expectancy by a few years. We are praying that Nora's body accepts this treatment (weekly enzyme infusions) so that we can give her and Alina a wonderful childhood full of life and love.