Nov 11, 2019 Latest post:
Feb 21, 2020
Hello and welcome to our site!
Anyone who knows Noah knows what an amazing warrior he's been. Starting with his first seizure at 2 years old, this incredible little boy has never had it easy. In a perfect world, he would be free to pursue the life he's always wanted-- filled with bike riding, tree climbing, motorcycles, swimming, and Scooby Doo. But as life would have it, what started as a simple seizure and mild delay progressed into medication resistant epilepsy, a long string of hospital stays, persistent illness, and regression. His diagnoses have evolved over time, reflecting the gradual deterioration of his condition.
I knew when this started that this wouldn't be easy, but I've been amazed at what my boy has not only been through but also overcome. Hopefully someday not only will we have answers, but a stable life in which he can flourish the way I always believed he could.
This website was started in order to keep all those who love my son updated to the best of our ability in one place. Please subscribe and follow our story here if you'd like to have the most recent information. Thank you, all who love us so well, for being a part of our journey.