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Noah was born on June 29th and on July 2nd we learned that the small heart murmur that was first detected on day 1 was getting louder. Noah never got to come us, instead he was ambulanced to Children’s Hospital were we learned that he had a moderate Ventricular Septal Defect & CHF. It is a defect (hole) in the wall dividing the heart. Noah spent his first 2 weeks working on feedings, putting on weight, breathing, and balancing his electrolytes. When Noah did get to come home it was back and forth to the doctors almost weekly for monitoring and checkups as well as a home nurse 2 times a week. His first 4 months Noah had to have a Nasogastric intubation (NG tube) through the nose, past the throat and down into the stomach to get the calories he needed to gain weight and strength. Since the removal and trial it has been a struggle but Noah has continued to do well and get to a good weight for the surgery.
On March 29th our warrior will undergo open heart surgery to patch the hole between the ventricles and over time his cells will grow over the patch, anchoring it in place even more.