Welcome to our CaringBridge website. We are using it to keep family and friends updated about Nicholas and share his journey over the past few months. In August of 2019 is when we started noticing he isn't feeling well. He was always tired and kept telling me " Mom, I just feel weird. " He couldnt explain it better than that. So we tried to pinpoint what it could be, took him to different doctors, but his symptoms could have been numerous things. He lost weight and was so exhausted he mostly lay on the couch. Then one day in September he said he feels much better. .he gained his weight back and looked and felt great. That lasted about 4 wks, then beginning of November he started losing weight again., this time he would have episodes where his left eye would twitch uncontrollably, he got shaky and sweaty and couldn't talk or respond..so we did a brain map, blood tests and food tests and started with a health program that included brain therapy and taking supplements daily. Also chiropractic treatments every few wks. He felt much better again, no more fits, so of course we thought we had found the answers. End of February it started again..this time it was much more like a seizure. Our Dr ordered an MRI, which was on March 6th, and it showed a 3.5x3.5 x4.7 mass in his left temporal lobe diognased as a DNET tumor. Never in my life did I feel so helpless.. we had no clue what that meant, just that a brain tumor sounded immensely scary. We met with the surgeon at Childrens Hospital of Philadelphia on March 13th, and he told us Nicholas would need surgery to remove the tumor. He explained that if the diognosis is correct, this type of tumor is typically benign, ( which means not cancerous ) but they cannot guarantee that until the tumor is removed and a biopsy done. So we felt much better after that visit, but we are just human and of course still had fears and doubts. The last 4 wks were an emotional roller coaster like we have never experienced. Nicholas had sooo many questions and we did our best to answer them honestly, but so many times we didnt know the answer ourselves. It has been, and is, a faith journey that cannot be put into words. Merv and I are usually not comfortable sharing anything personal with just anyone, but I felt led to share his story and our journey ..I pray it can be informational to others. Thank you so much to all of you who were and are praying for us..We appreciate your support and words of hope and encouragement. Thank you for visiting.