May 26, 2018 Latest post:
Jan 15, 2022
Nicholas’s Story Part 2
We’re devastated by the news that Nicholas has relapsed with osteosarcoma to his skull. His relapse diagnosis came on November 2, 2021, after 2 years and 6 months NED (No Evidence of Disease). Nicholas is 14 now and a freshman in high school. He plays wheelchair basketball, sled hockey and mono-skis, as well as being a Carroll Scholar and in the STEAM program at The John Carroll School in Bel Air, MD. To say this derails his whole life is an understatement. We’re heartbroken for him, but will do everything we can to support him through this latest challenge.
We’re so grateful for everyone’s love, prayers and support. We’re confident in Nick’s medical team and have a great complimentary holistic system in place too. Pray that treatment works and Nicholas stays as healthy as possible throughout.
Nicholas’s Story Part 1
Nicholas was diagnosed with osteosarcoma on April 23, 2018, two days after his 11th birthday.
Nicholas is a smart, sweet, goofy, strong, athletic boy. He spent all winter tearing up the mountain on his skis, teaching himself new tricks on the terrain park, and skiing moguls. He’d complained occasionally of his knee hurting while riding the chairlift, but forgot all about it once he was skiing. I (Michelle) took him to get it checked out, assuming it was some kind of mild skiing or soccer overuse type of injury. We were completely blindsided by his diagnosis.
Once the initial x-ray was taken, and osteosarcoma was suspected, things moved very quickly. The Johns Hopkins team squeezed him into their schedules, and within hours and days he was being seen by specialists. We are extremely grateful for his excellent team of doctors, nurses, child-life specialists, social workers, and the list goes on and on.
We are also grateful for the outpouring of support from our family, friends, colleagues, and communities. It means the world to us to know that Nicholas is so loved and our whole family is being supported in so many ways.
We appreciate all the prayers, positive energy, good mojo, healing thoughts, and good “whatever-you-believe-in” that everyone is sending our way. We can feel the love and it makes all the difference!!!