If you don't know my story, let me catch you up. I've talked about it a couple of times--here (https://www.youtube.com/watch?v=YtfAtL3FfSI
) and here (https://www.agilealliance.org/resources/experience-reports/transformation-begins-with-me/
)--but essentially sometime in the Summer or Fall of 2018, a cell in my bone marrow mutated and produced a gene that causes Chronic Myelogenous Leukemia. By the time I was diagnosed on Nov 2, 100% of my bone marrow was positive for the gene, and 94% of my blood cells had it.
Prior to 2001, there was no good treatment for it, but today there are drugs called TKIs that shut down the molecular pathways that the cancer uses. Almost everybody responds well to the treatment, and it rapidly disappears. I am not everybody.
I cannot survive without the drugs, but living with them is still a challenge. For the first three and a half years, I've been able to work, but that has become more and more difficult. Now I am experimenting with not working, and just focusing on my health.