Aug 16, 2017 Latest post:
Dec 23, 2017
Here's my story. It all started in mid June when I had an unusual cycle, the heaviest ever and terrible cramping which lasted a long time...fast forward to 10 days after and I still had bloating and every once in a while (but sometimes daily) cramps that would double me over in pain. Off to the doctor who scheduled an ultrasound immediately and then referred me to a gyne where he scheduled a hysteroscopy. Thankfully he couldn't schedule it for 2 weeks and by the time that came around my bloating was horrific..my belly was hard and I looked 8 MO's pregnant. Something was wrong and I knew it. Back to primary doctor (I have an HMO so back and forth I go) who quickly referred me to a Gastro doctor so he could order the perisyntesis (draining of the fluid) which was NOT fun but he stated the fluid would determine if it was my liver or ovaries which causes the similar type of fluid buildup. Neither would be a good diagnosis and I knew it probably wasn't my liver because I drink on average about 4 drinks a month for the last 10 years and sometimes not at all for months...now I know what an alcoholic looks like all too well and I'm not a cirrhosis candidate. I'm not going to lie that it kind of pissed me off that I had to keep saying that considering my efforts in that area. Anyway my Primary doctor called the next evening Aug 1 at 7:45 pm to tell me the fluid revealed ovarian cancer and that the numbers were not good and it was urgent that we get me to a gyne oncologist....Holy Crap! YIKES! WHAT NOW! to say the least! It also happened to be the exact day and 10 year passing of my beloved dear old Dad. Well the lovely Blue Cross Blue Shield folks weren't having that and a series of no fewer than 30 phone calls that next day and probably 20 the next day and again the next day (Friday). I was only referred to an oncologist. In the process my dear dear friend Bridget was able to connect with an acquaintance of hers, a nurse and her oncologist husband that made a call to the referred oncologist (they happened to be good friends) and they all 3 stepped up to the plate to be my advocates with the insurance company and fought to get me linked with the Gyne oncologist immediately as well. All 3 complete strangers to me who took this case on if I were one of their own flesh and blood. Turns out I needed that first oncologist just as well and both doctors are two super highly regarded physicians, leaders in their fields, with the University of Chicago and I could not be more pleased with either of these ladies. By the time I was squeezed in they already had a plan. Again, the numbers aren't the greatest and I will have 9 big blast Chemo treatments and an extensive surgery scheduled now for Nov 9 then followed by 9 more chemo treatments which will also determine more as to how much the big "C"'has spread. Now guys, I have no doubt and no choice but to fight, remain positive and rely on all of you wonderful dear friends who have made me feel so special and loved these last few weeks. Big hugs and thanks to my cousin Holly and niece Rebecca who have both been there every step of the way those first 3 days and every appointment since to hold my hand and tell me all will be ok...because it will. I truly would not have made it without losing my marbles without them. My dear friends Patti, JQ, Dho, Michele and Bridget, thank you for taking care of me and being warm shoulders to cry on...now we pick ourselves up, brush ourselves off and go back to business on chasing out this ugly nasty disease!