Welcome to our Caring Bridge Page for Don Simpson. Don is a loving, caring, kind, and selfless person. He is my love. Five years ago, Don was diagnosed with CLL ( Chronic Lymphocytic Leukemia). He was put on a clinical trial. The medicine has kept him in remission for those five years.
Approximately four months ago, Don started having problems with his left leg swelling. We went to two doctors that said it was a swollen lymph node causing the problems. We went for his routine visit with his oncologist, Dr. Flinn. The CT scans were sent to him. He said they looked abnormal. He had him do another scan. This came back conclusive that something was wrong.
He had to have a biopsy done on the lymph node. He was supposed to get a call back in ten days. He received a call in four. Dr. Flinn told us to come in 730 am, the next day.
When we arrived, Dr. Flinn, we were told the results. Don has a new cancer ( that has absolutely nothing to do with the CLL) called Leiomyosarcoma. It is a malignant tumor that lives on soft tissue muscle. So it wasn’t a lymph node. It was a tumor.
One of the other heartbreaking things is that he has to come off the CLL clinical trial medication. He has to go off; due to the fact, that the tumor is more urgency than the CLL. There are two problems with this...1. The trial is closed so he won’t be able to get back in the trial. 2. He will possibly go out of remission.
He knows he is going to have to have surgery, possibly chemo and radiation. He meets with the oncologist and surgeon on Monday and Tuesday. We will be able to give you more information after this.
We are scared of the unknown; however, we serve a mighty God. Whatever the turnout, we know that God will be beside us the whole way. We would like to please ask for your prayers and support during this time. We will be posting on here. We don’t want to upset the grandchildren. We don’t want them to find out on FB.
We love each and everyone of you. Take care and God bless, Sheila