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Oct 12, 2017 Latest post:
Dec 13, 2017
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Myles was born on October 7, 2017. Shortly after birth he was sent down to the Children's Hospital of Wisconsin for a cardiac issue. Once we got down to CHW they discovered that his aortic valve was not working, his aorta was narrow, and due to these issues he also suffered an acute kidney injury(AKI). The doctors that first saw Myles once we got here decided that him having open heart surgery as soon as possible was the best thing for him. In the open heart surgery they went to go fix his aortic valve look the way it was supposed to. The aortic valve is supposed to be a tricuspid valve, but Myles valve was only a bicuspid valve. Not only did this work against him, the bicuspid was also very thick and that the valve was partially fuzed together. That caused a difficulty to get blood through his body. They also found that his left ventricle on his heart was not working the way it should. His doctors explained it as the heart is supposed to squeeze to get blood through the entire body, and his was rotating just enough to get the job done. During his surgery, they went and shaved down part of the valve to help blood circulate through the body hoping that his left ventricle will pick up its job correctly. Myles has been our biggest inspiration in just these few short days, but we and his doctors are cautiously optimistic that Myles will be the perfect child he was meant to be a few months down the road.
At the point in time we are uncertain how long Myles will be here at Children's Hospital, but he will likely be here for about 6-12 weeks.