Hello Sanacore family and friends. Many, but not all of you know of Mya's journey over the past five months since her chronic pain started. She and our family have recieved overwhelming support and encouragement and appreciate every kind gesture from each of you. Family, friends, neighbors, teachers, coworkers, therapists, and doctors, "...Thank you!".
When her pain started, it presented itself in the form of daily, intense migraines after having the flu and has peristed ever since, for every waking minute of each day. After the first month, Mya lost close to ten pounds, became extremely sensitive to light and sound and experienced severe fatigue. After many months of therapy, pushing herself and utilizing all of the encouragement that she has recieved, she has made some improvements. Though she still has many of the same symptoms, she has learned valuable skills to help her cope with the pain and has also gained a noticable range of motion, strength, drive, and personality back. However, she still has a tough road ahead of her to get her back to where she was and where she aspires to be. When Mya is back in school every day, learning and laughing with her friends, when she is back on her mountain bike riding trails, playing tennis, swimming laps, and sharing her smiles and kindness with family and friends, she will look back on these days and realize what she can accomplish through hard work and dedication.
On August 29th, Mya is taking a big step in her recovery and rehabilitation and has been accepted into Cleveland Children's Pediatric Pain Rehab Clinic. For three weeks, she will be an out patient focusing on intense physical, occupational, and recreational therapy along with peer support groups, nursing, and neurology. Each day will be vigorously regimented, lasting ten to twelve hours and will push the limits of each child in the program. The idea behind the therapy is to reset/ reboot the central nervous system which has been firing pain signals, stuck in a pain cycle. The program has great success in helping children who suffer from chronic pain and provides the tools to help them continue to live a normal life, working through their pain and towards the day when the pain eventually goes away. Mya is ready for this challenge and this wonderful opportunity. Before this happened to her, she expressed a strong interest in becoming a physical therapist and helping kids one day. She has since developed a very mature understanding of the programs and specialists required to help kids while also being fortunate enough to experience the benefits. In addition, she has had the gift of talking with children and the parents of children who have the same, shared experience. Her progress will be updated on this site. Please feel free to check in on her, offer encouragement, share funny stories, and to ask any questions. Love, The Sanacores