Mona Mae Levorson

First post: Jun 5, 2020 Latest post: Dec 27, 2022
Summary of Mona Mae’s Ongoing Health Journey 1/7/2021 - Journal Entries give more details of our learnings along the way.

4/26/2020 Lump in breast noticed
5/7/2020 Breast cancer confirmed - Invasive Lobular Carcinoma of the Left Breast (Hormone Receptor Positive HER-2 Negative, grade 2 of 3, Ki-67 of 24%)
Prepared for left mastectomy
Blood tests showed very low White Blood Cells (WBC)
6/1/2020 Bone Marrow Biopsy
6/4/2020 Confirmed AML diagnosis
6/8/2020 Left Breast Mastectomy + 4 Sentinel Nodes
6/18/2020 AML complex karyotype, IDH2 172 mutation positive confirmed
6/24/2020 Treatment Plan Oral chemo (Venetoclax) and Injectable chemo (Azacitidine)
Cycle 1 (4 Weeks-7 Days Injections/28 Days Oral)
7/27/2020
Cycle 2 (4 Weeks-7 Days Injections/28 Days Oral)
8/18/2020 Bone Marrow Biopsy
8/24/2020 REMISSION determine via bone marrow biopsy results
9/28/2020
Cycle 3 (2 Weeks-5 Days Injections/14 Days Oral)
11/9/2020
Cycle 4 (2 Weeks-5 Days Injections/14 Days Oral)
11/16/2020 Breast Biopsy on lumps - negative (non-cancer). Determined to be fat-like cells due to mastectomy healing process.
1/4/2021
Cycle 5 (2 Weeks-3 Days Injections/14 Days Oral)
2/15/2021
Cycle 6 (2 Weeks-3 Days Injections/14 Days Oral)
3/29/2021
Cycle 7 (2 Weeks-3 Days Injections/14 Days Oral)
5/10/2021
Cycle 8 (2 Weeks-3 Days Injections/14 Days Oral)
Blood is so stable she no longer needs to test in-between Cycles
6/24/2021 Started letrozole (Femara) 2.5mg daily. Waited to start until AML treatments stable and consistent.

Every 6 weeks continues indefinitely. She tolerated treatments and has a 6 week break.


12/9/2022    Bone Marrow Biopsy
12/22/2022 Best Christmas Gift Ever! Joy to the World!Dr. Alkhateeb from The Mayo Clinic Telehealth Zoom appointment has confirmed there is currently no evidence of Acute Myeloid Leukemia (AML) and no residual AML at this time. He is comfortable stopping chemo based on the evidence of the bone marrow biopsy. Done in December 9. There has been research (small statistical numbers) and success stopping chemo after 1 year of chemo. Mom has had 19 treatments over 2.5 years. Mom is his first patient to stopped this treatment regimen. He supports this decision. Next steps -- blood tests every other month. Possibly bone marrow biopsy every 6-12 months (the blood work will be our map for this). He was very complimentary of her support system. It takes a team and collectively she's got the best! Cheers to The Mayo Clinic, science, the Power of her Team, and the strength of this incredible woman. Mona Mae continues to set an example for many. Thank you for your ever-present prayers and positive thoughts. We are grateful.

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