Mary Murphy Miss Mary Murphy

Glad to have found this "Caring Bridge" site. It's not easy to find a place where I can truly update and document my situation and my personal journey. People always ask, "How are you doing" but do they really want to know? Based on some of the responses I'm guessing not. Friends all want to be "kept in the loop" but it's difficult when you are very sick most of the time. Also I would never post photos or talk about my illness on FB except for the minimal fundraiser, like when I went to TX tot he Burzynski Clinic for alternate treatments not covered by insurance. The whole journey has been a wild ride for the past 7 years. I can't believe it's been that long. In the beginning they were "aiming for a cure" then overnight I went from that to "you shouldn't be thinking in terms of decades" now my Drs can't even look me in the eyes and give me any hope. The disease went from stage 3b Lung Cancer to stage 4 Lung Cancer and now Stage 4 Lung Cancer with LeptoMenengial Disease. An extremely aggressive Cancer which without treatment usually has a mortality rate of a few months at best. Naturally I am getting treatment and so far have outlived expectations at 6 months. But then again Drs have not given me any expectations except to look at the floor and fiddle with this paper or that pen.... giving me no sense of hope. There is a FB page andI have read on there that there are some Long term survivors. So there's that and for me that's enough for now. I will be one of the outliers. 😊