Miriam Stølen | CaringBridge

Miriam Stølen Miriam's Hope of LIFE!

First post: 10/1/2016
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My story:




In june 2015 I was admitted to hospital due to jaundice. The doctors did not take in to consideration that I had complained about stomach issues, fatigue, weightloss, loss of apetite, and other "cancer-red flags" numerous times over the last about 6 months all together.. 


I also have autoimmune illness, gone untreated, and I strongly believe that i could have avoided getting pancreatic cancer at this young age, had the doctors taken my signs of autoimmune illness such as systemic sclerodermy, in my bloodwork seriously YEARS ago insted of KEEPING IT A SECRET from me. I discovered this when I demanded to see my medical journals recently. Theese kinds of illnesses, when untreated, have a tendency of developing cysts in the  gastrointestinal trac (https://www.youcaring.com/external-link.htm?target=http-#--_--_-www.babla.no-_-engelsk-norsk-_-gastrointestinal-tract)t, like liver, pancreas, bile duct and so on. Theese cysts again can develop in to the most deadly(according to the number of those who get it) cancer there is. Pancreatic cancer. 


Still; I have been lucky! I was one of the 10-15% that was elegable for the "Whipple". The one surgery and still at this day also the only chance to survive from this horrid illness. But since the doctors didn`t take me seriously for several months, almost 6, to be exact, i have lymph node involvement and the big tumor, being very locally advanced, making my chances less than slim. 


I am a mother of 4 beloved daughters, married to my own wonderful superman and soulmate, I have everything I need...exept my health...and "a lot of money". 


My oncologist said that i`ll have to go and get treatment out of the country if I at one point, for example need more surgery, radiation or treatments shown to work in USA, Germany and so on, but not yet approoved in Norway. 


In Norway they simply seem to think it is a "waste of money" to treat my illness when the prognoses are so slim. Especially after getting recurrence. 
They seem to be unable to take in to consideration that i am young, a loving mother, wife, familymember, friend...  
I am Not 70-80 years old like 80-90-something% of the rest of the people getting this monsterillness. 
Just to be clear; I believe that EVERYONE decerves a chance, and by no means do I imply that I decerve help more than ANY OTHER HUMAN BEING, but i can not afford to pay to go out of the country, when and/or if this becomes reality. I have decided to create this "Cry for help" through a "Youcaring.com" now-Before the spreading of the cancer has become a known fact. But 80-99% of all getting this diagnosis AND the Whipple-surgery, gets reccurances within 5 years. Only 3-7% are alive after 5 years. As of today, we know that my cancer is genetic and my beloved father was recently diagnosed as well. He is inoperable and his palliative treatment was just stopped. 
We are devastated and I need to be with my family more than ever! Any questions can be sent to my facebook-page : WageHopeForMiriamma or see pictures or (try to) read my Norwegian blog; http://wagehopebymiriamma.blogg.no/i am sorry if my english is rusty.Love and best wishes to you all 

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