I possess a rare genetic connective tissue issue called Ehlers-Danlos Syndrome. My connective tissue makes me bendy like Gumby, and unable to mend like most people do. I have had about 22 surgeries throughout my life. There have been times of peace and joy, and there have been times of intense crisis with my health and my body throughout the years. This site is dedicated to my journey of finding healing, by whatever means possible, for the damage this disorder evokes upon my body and neurological system.
