Mikayla DeCicco

First post: Oct 26, 2018 Latest post: Mar 23, 2019
In February 2018, Mikayla began experiencing episodes of dizziness, lethargy, nausea, and vomiting.   After an ER visit and CT scan, doctors discovered a tumor in Mikayla's brain.  She was immediately admitted to Cohen's Children Hospital in Queens, NY where she underwent two surgeries to resect an orange sized tumor in her right ventricle.  The pathology report determined the mass to be a Choroid Plexus Papilloma.  Mikayla started physical therapy and slowly recovered, regaining her mobility and health.  Shortly after the surgeries, the DeCiccos experienced two other life changing events with the birth of Mikayla's sister, Gracie as well as the family relocation to Miami, Florida for a new job opportunity.   Mikayla was seen for follow up appointments and routine MRIs at Nicklaus Children's Hospital in Miami.  In September, 7 months after her first surgery, Mikayla began experiencing headaches again.  A subsequent MRI revealed a new tumor growth, and Mikayla underwent her third brain surgery to resect the mass.  Pathology for the second mass concluded a Choroid Plexus Carcinoma, a very rare brain cancer, with approximately 200 cases in the US.  Because of the proximity to family,  Mary and Michael decided to pursue treatment at Memorial Sloan Kettering Cancer Center in NYC.   Mikayla will start chemotherapy on Monday, October 22. 

Mikayla will undergo chemotherapy for the next 5-6 months.  During this time, Michael will remain in Miami for work and commute to NY as able.  During treatment weeks, Mikayla and Mary will stay at the Ronald McDonald house located near Memorial Sloan Kettering and Gracie will be cared for by family.   In between treatments, Mary and the girls will stay with family in NY. 

We ask that you join us in praying for Mikayla as she begins her fight against Choroid Plexus Carcinoma.  Please pray for no rise of her intracranial pressure, for her to stay illness-free during the upcoming flu season, and for Mary, Mikayla and Gracie to all find a new rhythm and routine during their stay in NY.   

We will continue to update this site in order to keep family, friends, and loved ones abreast of Mikayla's condition and to pass along specific prayer needs for the DeCicco family.