Welcome to our CaringBridge website. We've created it to keep friends and family updated about Michelle's journey.
We also had a fundraiser going through give forward.com to help with medical expenses and getting treatment, you can read some more of Michelle's journey there. https://www.giveforward.com/fundraiser/dks3/michelle-oms-fund
Michelle was diagnosed with Opsoclonus Myoclonus Syndrome (OMS), a rare neurological condition that affects 1 in 10 million people. It typically affects children, making Michelle's adult-onset even more rare. She first developed symptoms in 2010. It took 2 years to be officially diagnosed.
Michelle's symptoms of OMS at first were just dizziness. But then her balance started getting really bad and people would notice her eyes dancing around. Shortly after this her muscles started twitching, shaking and cramping. When her symptoms started she was in Chiropractic school, so studying was difficult- her vision was blurry and she was extremely fatigued and nauseous almost all the time.
Since then, it has been a long road. One year ago, in April 2014, Michelle was seen by Dr. Carrick at Carrick Brain Centers in Atlanta which really helped get her active life back. She continues to do IVIG and Rituxan treatments in addition to the brain exercises Dr. Carrick came up with. Michelle is doing much better and enjoying life with her husband, Jesse.