Aug 29, 2020 Latest post:
Feb 11, 2021
When he was born, Michael inherited a rare genetic disorder called Kartagener Syndrome, or primary ciliary dyskinesia (PCD) with situs inversus totalis. This means that his major organs (heart, lungs, liver, spleen, etc.) are on the opposite sides of his body. Having PCD also means that Michael is prone to frequent respiratory infections, chronic pneumonia, and other complications. There's no cure for PCD. Michael and his doctor agree that his lungs have progressed to the point of requiring a transplant. A transplant is also not a cure. The goals of the transplant are for Michael to live better, and live longer.
This is Michael's CaringBridge website. We're using it to keep family and friends like you updated on his progress as he undergoes and recovers from this major surgery. We appreciate any support you can provide, and we're grateful for your words of hope and encouragement.