Jul 11, 2019 Latest post:
Oct 22, 2020
My name is Marissa and I am Micah’s mom. My husband, Matt, and I began what is called a diagnostic odyssey (meaning a search for a diagnosis) for our son Micah on July 7th, 2019. We have since been to hospitals in 3 different states and another via video visit along the way for over a year, trying to find a diagnosis. A comprehensive summary of our journey for that year is written in the July 7th, 2020 journal entry here on CaringBridge (it will not fit here sorry). Micah was referred and accepted into the National Institute of Health Undiagnosed Diseases Network in August of 2020.
Micah has had countless doctor appointments, tests and imaging, hospitalizations, treatments, and therapy appointments. He is truly one of a kind and has touched countless people’s hearts along the way with his spirit and determination to overcome the adversity he faces as this still unknown disease has progressed.
We will continue to advocate for him and we will remain hopeful for Micah and our family as we continue to navigate this very challenging situation. We are using our CaringBridge website to keep family and friends updated in one place. We appreciate your support, words of hope, and prayers & thank you for stopping by.