First post:
Apr 22, 2019 Latest post:
Jun 25, 2019
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Our little Mia is a sweet, ambitious 6yr old who loves dance, dress up, gymnastics, and has a desire to be a professional cheerleader when she is grown up. Recently Mia has been diagnosed with Chiari Malformation. She also has a very large syrinx that has caused her spinal cord to be 3X the size it should be. On top of all of this she has developed scoliosis. She gets headaches, pain in her arms and legs, and she has begun to have trouble with her balance. Between her pediatric orthopedist and pediatric neurosurgeon they have decided that her condition will not get any better. She is so young, and a typical diagnosis/degree she is at is usually seen in much older individuals. There are 3 stages. Stage 3 means intervention/surgery. Mia is already into stage 3. In the early stages they give an 80/20 percent success rate. As an individual enters into stage 3 the success rate goes down. Our sweet girl will undergo a Chiari Malformation Decompression surgery on April 30th. We are hoping and praying this will repair everything, and only 1 surgery will be needed. Only time will tell, so fingers crossed 🤞, and many thoughts 💭, and prayers 🙏
