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I was born at the Winnie Palmer Hospital in Orlando Florida on, July 19, 2016. I was born 5 Weeks premature and went right to the NICU. It was there that I was able to grow and get stronger to go home with my mom and dad. I was in the NICU for 4 weeks. I received so much love and care from my doctors and nurses that they became like family to me and my parents. They supported my family with encouragement and prayers. Even though it was very hard for my parents to leave me every night they were able to do it because they knew I was in great hands and cared for. I had (and still have) a whole team of doctors and Nurses taking care of me.
I was born with a rare syndrome called, Apert Syndrome 1 in 65,000 to 80,000 newborns are born with it. It is because of the amazing doctors, Dr. Golden and Dr. Pollock I was diagnosed within hours of being born and was able to get the right care I needed. They were very caring and supportive to my parents, they made the time to meet with them and talk many times. I have had the best care and my parents are very grateful for Winnie Palmer Hospital.
Apert syndrome is a genetic disorder characterized by the premature fusion of certain skull bones (craniosynostosis). This early fusion prevents the skull from growing normally and affects the shape of the head and face. In addition, a varied number of fingers and toes are fused together (syndactyly).