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Feb 25, 2018 Latest post:
Mar 3, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
In early December my mom was diagnosed with Parkinson's disease. She spent 6 weeks in acute and subacute rehab before being discharged to our house on January 17th. The meds and therapy were helping and she was able to get around with the help of a rollator. On January 25th, she began complaining of a severe headache and left sided weakness and was taken to the hospital with a suspected brain bleed. The cat scans were negative but after being transferred to SMHC, an MRI was taken, which revealed multiple brain lesions deep in her brain. She was transferred to Portsmouth Regional hospital because there were no beds at Maine Medical Center and was going to undergo a brain biopsy. However, she declined rapidly so I decided to forego the biopsy and put her back on the steroids. The next day she was awake and talking. Given the MRI and response to steroids, the oncologist indicated that my mom has CNS lymphoma. There is no cure and chemo would only prolong her life by a few months. My mom has opted to forego aggressive treatment and is currently at Kennebunk Rehab, where they are working at getting her stronger as was my mom's desire. However, after a few days there the cognitive and physical decline has continued despite continued steroid use. She is bed ridden and our efforts have shifted to keeping her calm and comfortable. I'll keep you posted.