Martín is a 17-month old kiddo recently diagnosed with pineoblastoma, a rare late-stage brain cancer. His mom and dad, family, and big beautiful community are holding him through this treatment journey and Seattle' Children's Hospital and at home.
We started this CaringBridge site to keep everyone updated in one place. Because Martín is little and unable to write his experience in his own words, these entries will be written by his mom Emma. I (Emma) understand the gravity of interpreting another person's experience and do my best to genuinely represent Martín as his own person. I will probably also write mostly about my/our experience navigating the medical system and caregiving for one's child with cancer and other complex medical needs.