Mark Jessoe Mark's Wild Ride

First post: Jan 16, 2018 Latest post: Oct 4, 2022
Mark first started having trouble with leg weakness and neuropathy in late 2014. We didn’t start to really understand his neurological disease until his few weeks at the Mayo clinic in January of 2018. In March of the same year, his Neurologist at Northwestern Medicine diagnosed him with an atypical Neuromyelitis Optica Spectrum Disorder (NMO). Eventually, they changed his official diagnosis to Primary Progressive Multiple Sclerosis (PPMS).

During Mark’s hospitalization and transition to hospice/palliative care in May of 2019 I briefly journaled again both to provide updates on Mark’s health and to set up a care calendar of how we needed assistance. We successfully moved into a wheelchair friendly(ish) home in late 2019, remodeled to make the house fully wheelchair friendly in early 2020, and then settled into a routine during the first year of the pandemic along with the rest of the world. Mark had little to no disease progression until present day.

And now here we are with the summer winding down in 2022 and Mark has experienced another severe decline. So I am picking up journaling once again for the ease of passing along information. In 2018, Mark laughingly told me to name this page ‘Mark’s Wild Ride’; little did he know how fitting that title would be.

It is always hard to decide how much to share, so take as much or as little as you want from this site - the choice is yours. We are both so grateful for your love and support. Thank you for visiting.

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Mark’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register